We are honored to be able to donate this site and it’s hosting for this very important family and child-centric organization’s online presence. The site helps raise awareness, provides resources and facilitates online donations.
They have formed a non-profit corporation which allows them to raise awareness and funds for research, therapies, medication, clinical trials, and research that may potentially provide a cure for their children as well as others in the U.S. and around the world. They are on a mission to find potential therapies, and possibly a cure for this terrible and devastating disease. Won’t you join them?